Implementation and adaptation of the Society of Thoracic Surgeons´ standardized nomenclature for congenital heart surgery in a Peruvian hospital
DOI:
https://doi.org/10.47487/apcyccv.v6i3.489Keywords:
Database, Cardiac Surgical Procedures, Heart Defects, Congenital, PeruAbstract
Objective. To describe the process of implementing a congenital heart surgery database at the National Cardiovascular Institute (INCOR) in Peru, adapted to the standardized nomenclature of the Society of Thoracic Surgeons, and to present clinical–surgical outcomes in terms of morbidity and mortality within the framework of comprehensive multidisciplinary care. Materials and Methods. A prospective observational study was conducted in three phases: feasibility, database construction, and prospective data collection. Variables were adapted to the institutional context, and the process included a pilot test, strategic planning, multidisciplinary training, role assignment, monitoring, and periodic statistical analysis. Results. A total of 500 consecutive patients were registered between May 2022 and July 2023. Septal defects were the most common surgical indication. The most frequent complications included cardiac dysfunction and arrhythmias. In-hospital mortality was 7.6%. The database incorporated preoperative nutritional and dental assessments. Although 27.2% of the forms were fully completed, the remainder showed limitations such as missing data and the need for additional verification of information across modules. Conclusion. The implementation of a congenital heart surgery registry in Peru is feasible even in a resource-limited setting. This system allows the identification of critical areas for improving care and optimizing clinical outcomes, establishing a foundation for future quality improvement initiatives.
Downloads
References
Liu Y, Chen S, Zühlke L, Black GC, Choy M kit, Li N, et al. Global birth prevalence of congenital heart defects 1970–2017: updated systematic review and meta-analysis of 260 studies. Int J Epidemiol. 2019;48(2):455-63. doi: 10.1093/ije/dyz009.
Ramamoorthy C, Haberkern CM, Bhananker SM, Domino KB, Posner KL, Campos JS, et al. Anesthesia-related cardiac arrest in children with heart disease: data from the Pediatric Perioperative Cardiac Arrest (POCA) registry. Anesth Analg. 2010;110(5):1376-82. doi: 10.1213/ ANE.0b013e3181c9f927.
Jacobs JP, Mayer JE, Mavroudis C, O’Brien SM, Austin EH, Pasquali SK, et al. The Society of Thoracic Surgeons Congenital Heart Surgery Database: 2017 Update on Outcomes and Quality. Ann Thorac Surg. 2017;103(3):699-709. doi: 10.1016/j.athoracsur.2017.01.004.
Maruszewski B, Lacour-Gayet F, Monro JL, Keogh BE, Tobota Z, Kansy A. An attempt at data verification in the EACTS Congenital Database. Eur J Cardiothorac Surg. 2005;28(3):400-4. doi: 10.1016/j. ejcts.2005.03.051.
Marathe SP, Suna J, Betts KS, Merlo G, Konstantinov IE, Iyengar AJ, et al. The Australia and New Zealand Congenital Outcomes Registry for Surgery (ANZCORS): methodology and preliminary results. ANZ J Surg. 2022;92(12):3154-61. doi: 10.1111/ans.17886.
Vener DF, Guzzetta N, Jacobs JP, Williams GD. Development and implementation of a new data registry in congenital cardiac anesthesia. Ann Thorac Surg. 2012;94(6):2159-65. doi: 10.1016/j. athoracsur.2012.06.070.
Sandoval N, Kreutzer C, Jatene M, Sessa TD, Novick W, Jacobs JP, et al. Pediatric Cardiovascular Surgery in South America: Current Status and Regional Differences. World J Pediatr Congenit Heart Surg. 2010;1(3):321-7. doi: 10.1177/2150135110381391.
Arriola-Montenegro J, Coronado-Quispe J, Mego JC, Luis-Ybáñez O, Tauma-Arrué A, Chavez-Saldivar S, et al. Congenital heart diseaserelated mortality during the first year of life: The peruvian experience. Int J Cardiol Congenit Heart Dis. 2024;19:100557. doi: 10.1016/j. ijcchd.2024.100557.
The Society of Thoracic Surgeons. STS Congenital Heart Surgery Database Data Specifications. Version 3.41 [Internet]. The Society of Thoracic Surgeons; 2018 [citado 17 de febrero de 2025]. Disponible en: https://www.sts.org/sites/default/files/documents/ CongenitalDataSpecsV3_41.pdf?utm_source=chatgpt.com
Franklin RCG, Béland MJ, Colan SD, Walters HL, Aiello VD, Anderson RH, et al. Nomenclature for congenital and paediatric cardiac disease: the International Paediatric and Congenital Cardiac Code (IPCCC) and the Eleventh Iteration of the International Classification of Diseases (ICD-11). Cardiol Young. 2017;27(10):1872-938. doi: 10.1017/ S1047951117002244.
Harris PA, Taylor R, Thielke R, Payne J, Gonzalez N, Conde JG. Research electronic data capture (REDCap)--a metadata-driven methodology and workflow process for providing translational research informatics support. J Biomed Inform. 2009;42(2):377-81. doi: 10.1016/j. jbi.2008.08.010.
ITC Soluciones. Anexo: CIE-10 Capítulo XVII: Malformaciones congénitas, deformidades y anomalías cromosómicas - ITC Soluciones SA [Internet]. ITC Soluciones; 2013 [citado 9 de febrero de 2025]. Disponible en: https:// wiki.itcsoluciones.com/index.php/Anexo:CIE-10_Cap%C3%ADtulo_ XVII:_Malformaciones_cong%C3%A9nitas,_deformidades_y_ anomal%C3%ADas_cromos%C3%B3micas
World Health Organization. WHO child growth standards: length/ height-for-age, weight-for-age, weight-for-length, weight-for-height and body mass index-for-age: methods and development [Internet]. Geneva: World Health Organization; 2006 [citado 9 de febrero de 2025]. Disponible en: https://www.who.int/publications/i/item/924154693X
Kumar SR, Gaynor JW, Heuerman H, Mayer JE, Nathan M, O’Brien JE, et al. The Society of Thoracic Surgeons Congenital Heart Surgery Database: 2023 Update on Outcomes and Research. Ann Thorac Surg. 2024;117(5):904-14. doi: 10.1016/j.athoracsur.2024.03.018.
Jacobs JP, Wernovsky G, Elliott MJ. Analysis of outcomes for congenital cardiac disease: ¿can we do better? Cardiol Young. 2007;17 Suppl 2:145-58. doi: 10.1017/S1047951107001278.
Meller CH, Grinenco S, Aiello H, Córdoba A, Sáenz-Tejeira MM, Marantz P, et al. Congenital heart disease, prenatal diagnosis and management. Arch Argent Pediatr. 2020;118(2):e149-61. doi: 10.5546/aap.2020.eng.e149.
Bravo-Jaimes K, Lozano Moreno D, Orozco J, Rosales W, Macedo N, Medina M, et al. Tamizaje neonatal de cardiopatías congénitas críticas en el Perú: un llamado de urgencia. Arch Peru Cardiol Cir Cardiovasc. 2024,5(3):157-66. doi: 10.47487/apcyccv.v5i3.366.
Centeno-Malfaz F, Moráis-López A, Caro-Barri A, Peña-Quintana L, GilVillanueva N, Redecillas-Ferreiro S, et al. Nutrition in congenital heart disease: consensus document. An Pediatría Engl Ed. 2023;98(5):373- 83. doi: 10.1016/j.anpede.2023.02.022.
Akele MA, Dagnaw TE, Mehari MG, Delie AM, W/tsadik DS, Mekonnen MS, et al. Prevalence of undernutrition and associated factors among children with congenital heart disease in Africa: a systemic review and meta-analysis. J Transl Med. 2025;23(1):384. doi: 10.1186/s12967-024-05952-8.
Márquez-Pérez K, Zúñiga-López CM, Torres-Rosas R, Argueta-Figueroa L. Prevalencia reportada de caries dental en niños y adolescentes mexicanos. Rev Médica Inst Mex Seguro Soc. 2023;61(5):653-60. doi: 10.5281/zenodo.8316465.
Sivertsen TB, Åstrøm AN, Greve G, Aßmus J, Skeie MS. Effectiveness of an oral health intervention program for children with congenital heart defects. BMC Oral Health. 2018;18(1):50. doi: 10.1186/s12903-018-0495-5.
Mezones-Holguín E, Amaya E, Bellido-Boza L, Mougenot B, Murillo JP, Villegas-Ortega J, et al. Cobertura de aseguramiento en salud: el caso peruano desde la Ley de Aseguramiento Universal. Rev Peru Med Exp Salud Pública. 2019; 36:196-206. doi: 10.17843/ rpmesp.2019.362.3998.
Lazem M, Sheikhtaheri A. Barriers and facilitators for the implementation of health condition and outcome registry systems: a systematic literature review. J Am Med Inform Assoc JAMIA. 2022;29(4):723-34. doi: 10.1093/jamia/ocab293.

Downloads
Published
Issue
Section
License
Copyright (c) 2025 The journal is headline of the first publication, then the author giving credit to the first publication.

This work is licensed under a Creative Commons Attribution 4.0 International License.